My name is Jo Eames and I am mother to William, aged four and Phoebe aged two. We live in Hertfordshire. William was diagnosed with Duchenne Muscular Dystrophy in January 2016, devastating our lives. I have organised a team of 33 walkers and runners from the ages of 2 – 73 years old. I am doing this to raise awareness and funding for my son William.
We have set up a Facebook page and WordPress site to follow William’s story. https://www.facebook.com/DefendingWilliamagainstDuchenne/
William will be walking or ‘running’ in his own style for 1km in Parallel London 2017. This may not be much to many four year old’s, but to him it is a mountain to climb. He will be supported by 25 others – little friends and their families, grandparents, aunties, uncles, cousins and his little sister, Phoebe.
Six of the adults on our team will be going an extra distance and running the 10km including Uncle Nick, Uncle James, Uncle Ben, Kim, Emma and Ronan.
Why are we doing this? Well, William has Duchenne Muscular Dystrophy. Duchenne MD is one of the most common fatal genetic disorders that affects children around the world. It is a devastating, progressive and currently incurable muscle-wasting disease. We want to raise awareness of the condition, Williams’s plight and the charity Action Duchenne.
We want to support Action Duchenne to find a cure for this disease which has taken our little boy’s life in a direction no parent would choose. https://www.justgiving.com/fundraising/matt-eames1
Training tip: None really – have fun on the day!